Rare Diseases

“Matter of Time” is a new documentary chronicling efforts to cure epidermolysis bullosa, a rare and devastating skin disease. The film features concert footage from Pearl Jam's Eddie Vedder and will screen at the St. Louis International Film Festival this weekend.

Every day, Amanda Moller scoops powdered formula out of a can and shakes it up with water from her kitchen sink. It's like mixing a cocktail, she said,…